I've mentioned my sister, Joan, here a few times and anyone who has known me knows what all that entails. There's no doubt that her condition has been very difficult for myself and my family, as would any family that had a member that required constant care.
This isn't about my sister, though. This one is about my mother, Josie.
While I was a student at UC Riverside, I had a conversation with a visiting professor to which the subject about my sister and how my family came up. As the conversation got rolling, to the point where we had ended up in his office and sitting in chairs, I told him about my mom, and how she took care of her.
He responded by saying, "Your mother is a saint."
I can agree with what he said, in the sense that my mother is wholly selfless when it comes to my sister. She's over fifty, and she takes care of what is essentially a toddler in a 27-year-old's body. She will move her from her bed to the bathroom, then back. She grooms her. She talks to her in playful ways that embarrass me. Even as I write this, my sister groans loudly, and my mom responds with her own playful sounds. "Ooy," she says at this moment, "What iiis it? I will beeee there, daarrling."
In better days, when my sister was more mobile and could eat solids, the rest of the family helped share the burden of her care. But in my sister's current state, only my mom and my dad know how to operate her g-tube. I think I do a decent job with the suction machine, used to remove the saliva that Joan can't swallow.
Still, it's my mother that does most of the work, despite her own disabilities. She once had a job at the INS doing paper work (she even processed Martin Short's papers) until her constricted spine, that she had since birth, finally damaged some nerves, almost paralyzing her completely. With time, she is able to walk, but if she needs to move for long periods she has to take a cane with her.
"I see this as a blessing," she once told me, "because now I have more time to take care of Joan." See? Selfless.
Still, she is my mother, and has all the quirks and annoying ticks that any child notices about their parent. She's very judgmental, and emotional to boot... a deadly combination. She mothers me way too much, even when I don't want the help. And her stories (not the ones about her first experiences in the US, they're amazing [and the inspiration for my book/a few stories]. No, just the mundane stuff, especially any kind of gossip) are boring, and she takes way too long to get to the point. Looks like I take a bit after my mother. Sigh.
Regardless of how I or my other two siblings (I obviously can't speak for them) feel about her at her worst, I have to give my gratitude to her for everything else. Though I worry about how her caretaker duties are affecting her own sanity and health, there's no doubt that my family would have fallen apart if she had not stepped up. Also, there is no doubt that Joan would not have lived as long as she does without my mom's constant attention and expressions of love. And, for me, I don't have to focus my worries to my sister, and instead turn it on my own life.
Thank you, Mom.
Update:
Now, with an audio recording!
Update #2:
Apparently, there is no audio recording now!
1 comment:
Thanks for this, Jonar.
Post a Comment